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Living with a terminal illness

Many people learn that they are suffering from a terminal or life-threatening illness from a doctor, at a stage when they may still feel only a little unwell and the idea that they may be going to die is completely unexpected. Most of us remain completely unprepared for our own deaths and the shock of having to confront it.

Everyone has to find their own way of coping and whilst everyone handles things in different ways, the reactions and range of emotions and feelings of most people can follow a fairly typical path. By understanding and acknowledging these wide ranging emotions, it can help the sufferer, their carers and friends and family to cope with the situation. It also gives an opportunity, however painful to plan, prepare and say goodbye.

Reactions:

Shock and disbelieve: like bereavement, the first reaction is usually one of disbelieve. This is a very normal response for both the person who is ill and those closest to them and may last for several days.

Denial: The shock of the initial diagnosis usually gives way to denial to the person who is diagnosed with a terminal illness and those closest to them. During this period you may experience a range of emotions and will finally come to terms with the situation.

Anger and Grief: Coming to accept the diagnosis and the situation you may experience a feeling of anger. A sense of grief for what is being lost- health, children, happy years of the past and future.

The carer might also experience these feelings often mixed with guilt.

Fear: Some people have a natural fear of dying and the pain and symptoms associated with the illness. Towards the end people may come to terms with their own death.

Services that may be able to offer support and guidance

Nationally

The Befriending Network
Telephone 07041 420 192
E-mail: info@befriending.net
Webpage: www.befriending.net
Support for terminal and life threatening illnesses.

Caring Decisions (support website)
Webpage: http://www.caringmatters.dial.pipex.com/

Cancer BACUP
Telephone 08008001234
Mon-Fri 9am to 8pm
www.cancerbackup.org.uk/contactus

Full interpretation services available in any language, please ask for details.

Cross Roads Caring for Carer's
Telephone 01788 573653
Trained Carer's who will take over form the regular carer to give them a break

Helped the Aged
Telephone: 0207 253 0253
Website: http://www.helptheaged.org.uk

Hospice Information Service
Telephone: 0208 7788 9253
Mon- Fri 8am to 5pm answer phone all other times
E-mail: his.@stchris.ftech.co.uk
Website: http://www.hospiceinformation.info/

UK directory of hospices and palliative care services and information for members of the public as well as professionals caring for people with life threatening or terminal illness.

Macmillian Cancer Relief:
Telephone: 0808 808 2020
Cancerline: Mon-Fri. 9am to 6pm 0207 840 7840
E-mail: cancerline@macmillian.org.uk
Website: www.macmillian.org.uk

Marie Curie Cancer Care
Telephone: 0207 599 7777
E-mail:info@mariecurie.org.uk
Webpage: mariecurie.org.uk

The Samaritans
Telephone 0345 909090
E-mail: jo@samaritans.org.uk or Samaritans@anaontwells.com
Webpage: www.samaritans.org.uk
24 hour confidential helpline

Terrance Higgins Trust
Telephone 02072421010
12noon -10pm daily Legal line 0207405 381
E-mail:info@tht.london.org.uk
Website: www.tht.org.uk

Provides information and help on Aids and HIV infections

Local

Waltham Forest Crossroads - Caring for Carers LTD
Opening times Mon - Fri 9am to 8 pm
Telephone 0208 520 0137

Samaritans of Waltham Forest
Telephone: 0208 520 9191
Callers in distress: 08457 909090
E-mail: jo@samaritans.org

Age Concern Waltham Forest
Link-up Project
Marie Lenihan
Tel: 020 8558 3404
E-mail: m.lenihan@ageconcernwf.org.uk
Website: http://www.ageconcernwf.org.uk/linkup.html

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